The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Biking is Fun
Learning how to ride a bicycle is an early moment of accomplishment and freedom for a child. It is difficult to balance and pedal all at once while steering to avoid obstacles and other people. Of course a child will be proud of themselves when they learn how to put it all together to ride a bicycle down the driveway. Guiding the bicycle where to go starts to give a child an idea of freedom.
I enjoy riding a bicycle. I must confess; I have more than one bicycle. Watching a child wobbling along on two wheels finding their sense of balance brings a smile to my face. When they finally get the hang of it I will shout for joy along with them.
This little guy is learning how to balance without the complications of pedaling.
This guy is hesitantly figuring out how to start from a stand still.
This young lady took a few pointers from me and in an afternoon put it all together.
It is so much riding around! It is even more fun with puddles!
Creatures!
Creepy, crawly creatures are everywhere here in this tropical climate. And everything that crawls seems to come in gigantic versions; big moths, big spiders, big geckos. The kids (OK it's mostly the boys) are fascinated with bugs and seem to go in seasonal cycles playing with different insects as the bugs hatch and find homes in the vegetation.
Recently spiders were all the rage with the boys collecting certain kinds and then conducting spider fights on the bristles of brooms. One day I drove by a large group of school kids at a roadside vendor who was selling something in plastic bags about the size of rulers with something small and black in each bag. The kids were buying the fighting spiders on their way home from school!
For the last couple of weeks the boys gravitate to the flowering plants as they enter the school gate in the morning. Praying mantises have been emerging and the kids want to see how many they can find. They don't use them to fight (thankfully), but are eager to carry the cool looking bugs around during the day. Impromptu mini-science lessons have happened with the appearance of these green creatures like learning that the female mantis eats the head off the male!
So if you are into bugs, Cebu is the place to be. Hang out with the kids for a while and you'll learn new and creative ways to play with bugs.
Busy with Birthdays!
It’s a busy birthday week! Today is Tuesday in Cebu, we just finished birthday parties on Saturday, Sunday, and Monday nights. We have a small break and then, coming up we have two more celebrations on Thursday and Friday! Whew!
There are times (this week for instance) when I think it might be wiser to celebrate once a month for everyone who has a birthday that month but not most of the time. For these kids who have had very few special moments just for them, an individual birthday party, celebrating them seems more than appropriate. Here are a few photos...
Monday's birthday was especially exciting because the birthday girl turned 18. The picture below is of her reading a wonderful letter she wrote thanking her house parents, care givers, and God for the love and provision she's recieved while at CSC.
Auntie Warlita Retires
Auntie Warlita has worked as a nurse at CSC since 1997. She has taken hundreds of children to the doctor in the past 18 years. Lovingly taken care of and prayed for the kids and the ministry of CSC. Her love, dedication, and Godly example was a great encouragement to everyone she came into contact with. All of us at CSC were blessed to have her be a part of our lives the past 18 years.
On September 30th we had a farewell party and lunch for Auntie Warlita hosted by the nurses. Uncle Mitch shared about Warlita followed by a lunch with many of the CSC workers. A wonderful time of fellowship, laughs, and appreciation to Auntie Warlita was had by all.
Thank you for your ministry to CSC Auntie Warlita. May God bless you as you continue to serve Him!
Reading for Everyone
The final activity related to CCHS's Reading Challenge was a trip to the Cebu City Public Library, so the kids headed out to visit the library one day last week. The trip was meant to be the kids' reward for doing such a great job during the Challenge, but another underlying purpose was to expose them to the idea of a public library. Unlike most communities in the United States, the existence of public libraries in the Philippines is rare, so most people have little or no opportunity to avail themselves of the multitude of services public libraries provide. The Cebu City Public Library is the only public library in the city of 870,000 people!
When we got to the library, the head librarian welcomed us and explained what a public library is. Then the kids were allowed to browse through the books in the children's section for about thirty minutes. Great fun! Most of our children have not had the opportunity to read books when they arrive at the shelter. The idea of being able to look at and read books whenever they want is a foreign experience, so they thoroughly enjoy our school library and the mini-libraries in the classrooms and houses. This was another chance to be exposed to books in a different environment.
While we were at the library, we learned about a program to bring books into the communities in the city. Books bags are distributed by the library to kindergarten and first grade students and their families for them to keep at their homes for one week. The book bags are returned after a week and the family is given another bag for the next week. It's sort of a creative revolving check-out system. Coupled with the book bag distribution are sessions teaching the parents how to read with their children. It was encouraging to hear the public library is reaching out into the communities in this way.
The kids are still pumped about reading and continue to challenge themselves by reading a lot. Right now they are into book series and books related to what they are studying in science class. Maybe that will shift to books about countries and people around the world since United Nations Day is coming up. We'll see...