The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Party Party Party
There are many parties at CSC in December. December 5 was the CSC workers party. A fun evning of games, prizes, a short meditation, food and fun was had by everyone.
Saturday December 11, was the CSC Outreach party. Many former CSC residents came for an afternoon of games, a gift from Santa Claus, singing of Christmas carols, hearing the Christmas story and a meal from Jollibee. It's always fun to see some of our former CSC kids and their families.
There are still many upcoming CSC parties! The individual department parties, the school program, progressive dinnner, Christmas Eve and Christmas day activities.
Thank you to everyone who helps make the Christmas Season so special for all of the CSC kids and workers.
Haircuts
With a house full of kids, what to do about haircuts? The solution is simple. Bring the barbershop to the house.
Many Saturday mornings at the shelter, a barber shop is set up somewhere near one of the homes. A local barber brings his tools of the trade and spends the morning snipping, trimming, cutting, and buzzing. This past Saturday the Duterte boys all got a trim.
Giving generously and with a cheerful heart
The Christmas decorations are up and holiday tunes can be heard wherever you go! It is almost Christmas, only 15 days away! One of my absolute favorite CSC Christmas events is Junel's box. Maybe you have already heard the story, but for those of you who haven't...
Junel used to live at CSC. His generous spirit was his legacy and it inspired a wonderful CSC tradition. Before coming to CSC, Junel was not treated very well in his previous home. He was not allowed to eat with the rest of the members of his household and he was only able to eat if there was food left over. When he came to CSC, he expected it to be much the same. When it was mealtime, he went and sat in a corner instead of in a chair at the table, where all of the other children were. He needed reminders that he was just as special and loved just as much as the other CSC children.
Junel's most prized possession seemed to be a small film canister with a few coins in it. He loved to shake the canister to hear the coins jingle and he did so frequently! That noise signaled his caregivers of his presence and it became part of the background noise in the home. It was so much a part of the din that one day when it was not heard, the caregivers became concerned. "Where is Junel?! He should be upstairs! Everyone is home from school!" The caregivers rushed upstairs and sure enough he was there, and so was his canister, but it no longer made any noise. It was empty.
In school that day, Junel's teacher had told the story of children on another island not having any slippers to wear on their feet. He was so moved and compelled to help them that he gave all of his money, every last coin, each "noise-maker" he had.
Sacrifice. Giving everything you have. Giving what you cherish the most. That is truly what this season is all about.
"For God loved the world so much that he gave his one and only Son, so that everyone who believes in him will not perish but have eternal life. God sent his Son into the world not to judge the world, but to save the world through him." John 3:16-17
Every year at this time, all of CSC's children hear the story of Junel. For some of them they have heard it before, but for many, it is a story they are hearing for the first time. For children new to CSC, they are not so far away from the life they lived before. They can still remember begging on the street, or when their stomach hurt so much because it had been so long since they had eaten. They have vivid memories of being in need. The kids hear the story of Junel and then they hear of a family in their community that needs help. They see pictures of the family and the home. Maybe they see themselves. The kids are then told they have the opportunity to give money from their allowance to help that family this Christmas. The contributions will be used to buy food, and other household items to meet the needs of the family. The family this year needs a home so if enough funds are raised, building materials could be purchased.
Every year, I am astounded at the generosity of our children. So many of them, when told how much money is in their bank and asked how much they would like to give say, "Tanan." Meaning everything. They will give it all. And they do so with big smiles on their face.
For they were once in need and now they can help others. 'Tis the season, indeed. Merry Christmas!
Tree of History
The Christmas tree is up at the school. The kids use their pictures to make star ornaments for the tree. New and old ornaments hang and twist in the breeze.
The many pictures draw in the kids. The kids like to see how they have changed and grown from their ornament pictures of past years.
On this one side of the tree there is a kid who has been at CSC 14 years, the next star ornament is a kid who arrived last month, and so many others in between.
The kids can see a part of their history on this tree.
Big Hearts
CSC loves making new friends, and we made a few yesterday. I received an email about two women who were interested in visiting us in Cebu and learning more about shelter work in the Philippines. They feel called by God to explore this and potentially start a shelter. I got to spend some time talking with them.
It was a very exciting conversation! I was asked a lot of questions about how we do our work. Their hearts were big, but I was especially thrilled to learn about the careful consideration with which they are approaching this idea. According to my limited wisdom, Cebu could certainly use more people who are working to benefit the poor but that doesn’t mean it’s what God has in store for these two ladies. Big hearts can sometimes become so excited to give that they begin to serve because of what they get out of it, or because the need seems so great, instead of because God deserves the glory of our service. It’s okay to feel good serving others and the need is HUGE, but the point behind any ministry should be to bring glory to God. A big heart is an amazing first step. Being patient, listening carefully, and working hard in order to learn and grow are next steps.
It was an honor to be part of the next steps with our two visitors yesterday. I hope they will continue to listen to God and follow the path he has for them. Maybe that’s to Cebu!