The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Wheelchairs of Hope
Two weeks ago, my family (Joel, Ethan, Shari, Paul) and I had the great opportunity to visit friends and relatives in Japan. Joel, Shari and I spoke at Kurume Christ Church (previously described by Shari in her blog) about CSC and their foster friends. We also had the chance to visit Wheelchairs of Hope.
Wheelchairs of Hope is a non-profit organization in Japan that refurbishes and distributes used wheelchairs donated by companies, individuals and other organizations. Their main beneficiaries are the countries around Asia. As of February 9, 2016, they have given away 2,000+ wheelchairs all over Asia including the Philippines.
In 2009, through the connections of friends in Japan, Wheelchairs of Hope donated a wheelchair to CSC. Since then, we have been in their minds as a wheelchair recipient. Whenever they ship wheelchairs to the Philippines, Wheelchairs of Hope never fails to contact us and ask if we need a wheelchair or two. It was a wonderful surprise to see a picture of John Ray, who received a wheelchair from them, at their warehouse. Even though it was 7 years ago, they kept John Ray’s picture in a frame, never forgetting the little time they shared with him. One of the people who came to CSC in 2009 still remembered John Ray and asked how he is doing.
I like visiting and hearing stories about other organizations and foundations that have a heart like Children’s Shelter of Cebu; at the same time, sharing our story with them. God uses different people from different walks of life to serve His people and glorify His name. Having visited Wheelchairs of Hope made me proud of the work we are doing at CSC and humble at the same time.
“In a large house there are articles not only of gold and silver, but also of wood and clay; some are for special purposes and some for common use. Those who cleanse themselves from the latter will be instruments for special purposes, made holy, useful to the Master and prepared to do any good work.”—2 Timothy 2:20-21 NIV
The Campers are Ready!
There has been an excitement going around CSC for the past few weeks. Every other year in February a work team from Minnesota comes and does a camp with the older kids at CSC. They get to ride a bus and travel to camp. Once at camp it is four days of fun, fun, fun! The kids get to hear from Gods word, swim, sing, play silly games, eat good food, have camp fires, hang out with really cool people, and so much more. It is definitely an experience the kids never forget!
Camp is approaching this week but the kids have had their bags packed for awhile already. Those who have been to camp before have shared with their new friends at CSC all about it. Our work team arrived within the last few days and everyone is ready!
A big thank you to our work team for coming and giving our kids such a special experiences! Please keep our kids and work team in your prayers as they are off at camp this coming week and weekend.
Tale of Two Offices
As you may know, my wife and I have been serving in Cebu on a short term basis. We were there for about 13 months. We returned to MN at the end of December because of an urgent health concern in a close family member and will be ending our time with CSC in March. While the circumstances which brought us home have been discouraging we’ve been blessed by how flexible CSC has been with allowing us to continue to serve.
Going to the office in Minnesota has been a slight adjustment. Instead of seeing Mitch each morning, we see Matt. At lunch time, we don’t hear Cebuano, we only hear English. In Cebu I was relieved to get to the office and sit in air conditioning, now I see snow outside and keep inching my chair towards the sunlight.
Strangely though, it’s the similarities that have been more striking. The people who come in and out of both offices are talking about what’s new with the kids. The walls are covered with pictures of the same smiling faces. Even the work is the same; it’s true that many of the tasks are different, but that great momentum God gives us to bring glory to His name while serving these children, it remains unchanged.
What an amazing thing that God has done; bringing so many people with so many different stories together to share in the work He has in store for us.
Annual Physical Check-up for All CSC Workers
Yesterday the CSC workers all had their annual physical checkup. A big truck pulled up into the driveway at CSC and the workers came throughout the day to have blood work, chest x-rays and a physical checkup. The needles were not well liked by the workers but they were grateful to know more about their health.
Aunties waiting for their turn.
Blood pressure check
The least favorite. Blood extraction
A Dip in the pool for reading
As I do research for my book on the history of CSC I find stuff that can't go in a written volume but is part of the story of CSC. I can mention it in the book but I can't put in the video that shows it. Here is one such incident, when the kids ganged up on me because they won the Reading Challenge. This was around 2006. Fun times at Children of Hope School. At my expense!