The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Visitors and Volunteers
One thing I've been able to witness this year is how often visitors are able to use their skills and abilities to help give back to CSC. So many times people don't just visit CSC, they also volunteer at CSC.
Here are some photos from the past year of family and friends that have visited and volunteered at CSC.
1. Gordie, one of CSC's board members, recently came to see CSC in action. This is a picture of when he led a Bible study for the older boys and girls at CSC about having a positive self image.
2. My family visited CSC in February. My mom taught the kids origami and led a workshop for the teachers. My dad did a pottery demonstration and then led an art activity where the kids made clay fish (or sharks or piranhas).
3. When Lindsay's family came to visit her dad, Allen (or Dr. Mork, in this picture), helped out by seeing some of the kids that were sick.
4. Our friend Angie recently came to visit Lindsay and I. She's an elementary school teacher back in Minnesota. She volunteered to help the preschoolers who had a lesson on clowns. She jumped right in. I love this pictures!
What an honor it is to have such incredible people visit and volunteer at CSC!
A True Calling
Last week I had a friend visiting here in Cebu. Marlys Healy, the co-founder of CSC, took us on her standard "city tour" so my friend could experience Cebu a little bit more. It doesn't matter how many times I've been on that city tour with Marlys - I love driving around and seeing this city through the perspective of CSC.
There was one moment that will always stick with me from this particular city tour. Marlys stopped outside of a building to tell us a story of some kids who had come to CSC from that side of town, and she was mid-story when she happened to turn around and see these three kids on the other side of the car. Immediately she stopped telling the story and brought our attention to the kids sleeping on the concrete.
What will always stick with me from this moment seeing her get big tears in her eyes looking at these three through the car window. We all just sat there for a minute taking in this sobering reality. She even had to stop telling her story for a minute, which, if you know Marlys, is pretty significant. :) But what is so astounding about this is that Marlys has lived in Cebu and worked with kids in these very difficult situations for 35 years. And the fact that she still feels so much compassion that it moves her to tears after so many years is simply incredible.
I praise the Lord for Marlys and her true calling and deeply compassionate heart for ministering to children in need.
Fried chicken & festivities!
We had some visitors here recently. An adoptive family had returned to show their son where he came from so many years ago. Those visitors are such a blessing! Our childcare workers are always touched to see the children they once fed and bathed return happy and healthy and grown. This family went above and beyond, however. Their son decided that he wanted to celebrate his birthday with all of the kids at CSC. He and his family arranged to have the Jollibee birthday brigade come with balloons, food (SO much food!), games and prizes! Check out how much fun was had!
THE FEAST!!!! There was fried chicken, spaghetti, Yum burgers, peach mango pie and Coke!
THE GAMES!
This game was particularly hilarious to watch. The kids started in a circle and then had to be the quickest to get into groupings of various sizes! There was plenty of scrambling and frantic behaviors! Other games involved singing a song, being the first to bring up a requested object (I gave my phone, a hair clip and a 1 peso coin for the cause) or saying "Jollibee," holding out the "bee" for the longest amount of time. Let's just say some of our kids can hold a lot of air inside their little bodies! ;)
Eagerly awaiting the arrival of THE Jollibee!
EXCITED SMILES ABOUND!!
And he's HERE!!!!!!
You would never know these two are archrivals---Joemar with his McDonald's hat! :)
Cool dudes!
Clearly my camera was one of many, but you get the idea!!! :)
Thanks to all visitors everywhere! Your presence here is a blessing to the kids, to our workers and to the staff.
Happy Resurrection Day!
"Praise be to the God and Father of our Lord Jesus Christ! In his great mercy he has given us new birth into a living hope through the resurrection of Jesus Christ from the dead" -1 Peter 1:3
There have many different activities at CSC over the last few days to remember and celebrate Jesus' resurrection! He is RISEN! Praise the Lord!
On Wednesday, we had an Easter program at school! We sang praise songs to the Lord, watched several performances, and played some games related to Easter and Jesus' resurrection. It ended with announcing the winner's of the coloring contest! Here are the winners!
On Sunday, many of our kids performed in the morning church service. Below is a picture of them up on stage. It was hard to get a good picture because they were so far away. Almost all of the kids in white are our kids!
After the church service, each of the houses had their own Easter egg hunt. The kids had so much fun searching through the bushes and around the yard for the eggs! Here are a few of my favorite pictures from that event!
Carts, Carts, Carts
Carts are a popular and useful means of transporting cargo in the Philippines. In Cebu City they are used for hauling just about anything, from fruits, vegetables and meat, to hardware, wood and household items. Some families live on their carts. Carts can be seen on streets and sidewalks - everywhere that people need to transport goods at a reasonable price. Of course, the toddler cart at CSC transports the most precious cargo!