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Thomas faces another crucial surgery
Thomas was born on August 2, 2013. His mother disappeared just moments after he was born in a small village north of Cebu City. The midwife that delivered him brought him to a government facility called the Receiving Home, where he stayed until we brought him home to the Shelter on October 8, 2013 . He had several episodes of difficulty breathing at the Receiving home so was admitted to the hospital twice before we took him in. Shortly after we got him it was determined by an Ear, Nose and Throat doctor that he had a significant congenital nasal obstruction, which needed surgical intervention on December at a hospital in Manila. Stents were placed inside his nostrils, which allows him to breathe through his nose. He also has a serious problem called craniosynostosis, which means that the sutures of his skull fused prematurely. Consequently, his brain is bulging through the anterior fontanelle, which has caused his head to become misshapen, and fluid has built up around his brain. Several doctors from Cebu, the US, Africa and Manila have met and discussed Thomas’ case, and they have determined that our neurosurgeon here in Cebu should do the surgery as soon as possible at the government hospital called Vicente Sotto Medical Center. One of our nurses, Arlyn, a caregiver named Auntie Delia, Thomas and I went to see the neurosurgeon today. Dr. Gigataris explained the surgery, which is scheduled for next week. Thomas will most likely lose a large amount of blood so the doctor would like to have four donors standing by. Three of our "uncles" will be screened this week, and our volunteer speech pathologist from Hong Kong has offered to give before she leaves to go back home on Friday. Thomas will be admitted on February 10, and the extremely delicate and complicated surgery will start early on the 11th. He said that it will most likely take about six hours. The doctor said that there will be an intensive care specialist working with him, and the anesthesiologist, of course, in addition to a team of residents and nurses. The surgeon will remove the fused portions of the skull, and four areas of the skull will be re-shaped by making several small cuts in each portion of bone. The bones will be sutured together afterwards. His head has gotten very large, and his eyes are bulging so it has become an urgent matter to do this surgery as soon as possible. They are hoping that the procedure will reduce the build up of fluids so he will not need to have a shunt at this point. Thomas will be in intensive care for one week, and will be in a private room for another week, at least. Thomas stared directly at the doctor the whole time he examined him, and smiled at him numerous times. We assured the doctor that many friends are praying for him, and he expressed heart felt gratitude when he heard that. His wife, a neurologist, will do the pre-op physical on Friday. Please join us in prayer for precious Thomas as he faces this huge surgery. The surgery could cause severe brain damage but without it he will not live. When Dr. Gigataris heard about Thomas’s struggle in his short life he said that clearly he has fought for his life, and that now he will help him fight even harder. Could you join our staff in praying fervently for Thomas, Dr. Gigataris and the surgery on the 11th? We will post the exact time when we know it, probably in a day or two. Thanks for the loving and praying hearts who can make a huge difference in his life.
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A Night to Remember
We all take turns being on duty on the evenings when the House Parents in each home have their day off. It makes our already long day even longer but I have learned that I usually leave the home more refreshed and certainly more blessed than when I walked in a few hours earlier.
It was my night to be on duty at the Duterte Home. All the little kids had gone upstairs to bed. I gathered the older kids together to ask for prayer requests and to talk about things that they wanted to talk about. The conversation quickly became about the recent typhoon. The kids had heard stories from our workers and from friends at school regarding the death and/or destruction that the typhoon brought, some of it not very far away. The kids were unsure about their birth families experience in the typhoon as well. Everyone just seemed to have a sad story to tell. Jacob, who is 27 years old, wheel chair bound and unable to speak was in our group. Jacob has Cerebral Palsy. It was obvious that these stories were hard for Jacob to hear, he was making sounds indicating distress and was getting more spastic as time went on. I was afraid he was either going to break the bindings holding him in his wheel chair or break a bone! I asked one of the workers to take Jacob to another room. I explained that we would ask Jacob to come back for our prayer time. Jacob agreed.
For our prayer time I asked for volunteers for each of the people, families or circumstances that we had put on our prayer list. When we got to one family that the kids had told about who had lost their home in the tsunami like storm surge that came with the arrival of the typhoon in a nearby town Jacob shouted and raised his hand in the air, he wanted to pray for that family. His name went on the list. We spent time in prayer, it got quiet and Jacob had not prayed yet. I looked up at Jacob and he was looking at me, I just nodded, indicating that it was his time to pray. He shut his eyes and he prayed. A more beautiful prayer I have never heard. As I watched and listened to Jacob pray I looked around at the other kids, many of them were looking at Jacob too. I was not the only one with tears in my eyes. We could not understand one word that Jacob prayed, we did did understand his emotion and we did understand "amen!"
Later, when all the kids were in their bedrooms I went to Jacob's room. I thanked him for his prayer for the family and told him that I knew that God heard and understood every word he said. I told Jacob that I thought that God was comforting the family right then because of Jacob's prayer. Jacob got his big "Jacob smile" that takes up his whole face and even tends to make his body spastic...but he worked hard and brought his arm up in the air, got his pointer finger extended and with joy pointed straight up. Yes Jacob, God in Heaven heard and understood every word of your prayer! I knew that is what he was telling me, and I agreed. I left for home with a smile on my face and an extra blessing in my heart.
I didn't have my camera with me that night. This photo is a re-enactment of Jacob telling me exactly where his prayers go!
Fearless boarders!
Christmas has come and gone, and at CSC, after that holiday season comes "Waveboard Season!" Okay, okay, it is not a real season, but after this particular Christmas, it certainly seems like it is. Santa delivered 18 waveboards to us this year and most days there are that many riders out at one time! It is amazing to watch the abilities that our kids have with this toy. Within minutes of getting one, some kids are able to get on, master the balancing, and with a little shake to get them going, they are cruising down our driveway. They make it look so easy, so easy in fact that over the Christmas break, I was motivated to give it a try.
I put one foot on, looked for a handhold and tried to convince myself to put my other foot on it. AGES later, I put my other foot on and with a little scream, quickly put my foot back on the ground. The kids, of course, found it very amusing. They were very encouraging and patient with me, despite their immense excitement at the possibility of seeing Auntie Lindsay waveboarding! Sadly, I didn't go anywhere, but the sight seemed to be enough to satisfy their curiousity!
Check out the talent we have in our midst!
Christmas 2013
Another busy and exciting Christmas season has passed at CSC. There were many programs and activities to entertain the children and teach them about the meaning of Christmas. Click on the activity below to see some photos of the event.
Christmas at Church
Christmas Play at Children of Hope School
Christmas Outreach Party for Former Residents
Christmas Eve Party
Christmas Day
Update on Thomas
Thomas is back in Cebu! He returned after having successful surgery on his nasal passage on November 13 at the Philippine General Hospital, a huge government facility in Manila. Many people contributed to this success, including doctors, nurses, child care workers, a ministry in Manila, and lots of CSC prayer and financial supporters. So many people have expressed love and concern for our little guy! A Christian ministry in Manila, the Nehemiah Project, helped us greatly by bringing money to the hospital and pharmacy to pay bills, so our women didn't need to bring lots of cash with them. (The hospital does not accept checks or credit card payments.) Many thanks to Dan and Carla Chalmers and Darrah for this favor, and for underwriting many of Thomas' expenses at PGH.
CSC's care team in Manila was led by Warlita Manlon, our head nurse. Also along were two of our child care workers who alternated duty at the hospital every 12 hours. (In the Philippines, hospital patients are required to have "watchers" to provide some of the basic nursing type care, buy medicines and pay other bills. Our two workers jnow Thomas very well and he was comfortable with them. They all combined to provide him with excellent, loving care, and he made a great recovery. The doctor removed a significan nasal obstruction, and almost right away.
Shortly after his surgery he was examined by a neuro surgeon, as he needs additional surgery on his hydrocephalus (water on the brain). Marlys Healy was in Manila with Thomas during that consultation, and the doctor agreed to go to Cebu to do the surgery. What a blessing that will be as the logistics of caring for a child in Manila are very complicated.