The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Thomas is Home!!
Little Thomas is home! After two weeks of being in the hospital, from the operating room to the ICU to a private room, he was allowed to go home on Tuesday. It was an exciting day for everyone at CSC, especially in the Duterte Home. Our Head Nurse Warlita Manlon said it best in the car on the way home. "We are blessed to have Thomas in our lives." How true. We ask you to continue praying for him as he recovers from the surgery to his skull, and that we would take very good care of him in our nursery.
A little miracle
Sometimes I am called upon to step in and help diffuse a situation happening in a classroom. Yesterday that happened again. A student who was bothering his classmates needed some help. This was someone who had had trouble complying with rules and expressing frustration appropriately when he arrived at the shelter. He was having trouble again yesterday.
After leaving the classroom, I had him cool down while sitting in a chair near me. After a few minutes we talked. He said he was angry and why. He told me what he had done to his classmates to tell them he was angry. We figured out what he should have done differently to tell his classmates he wanted them to stop. He said he’d try that next time. In the world of counseling and school, it was textbook stuff for learning social skills.
As we walked back to his classroom, I marveled at how much he has learned about how to express himself in positive ways when he is frustrated or angry. I thought of the people (counselors, house parents and teachers) who have coached him and modeled this for him.
As we entered the classroom together, he apologized to his classmates and sat down in his seat. Class continued.
A little miracle in the midst of a busy day.
Centralites Are Here
Central Baptist Church of Saint Paul, Minnesota, the home church of Paul and Marlys Healy and Mitch and Ruth Ohlendorf, has sent a team of 11 members to CSC to visit the ministry, fellowship with the children, staff and workers, and run a three day camp for the older children at the Shelter. This has become an every other year tradition at CSC, and hundreds of kids have enjoyed being a part of these camps over the years. The camp will be held in a Christian camp on the beach in Santander in southern Cebu. The kids will have time in the ocean, hiking, playing games, sleeping in tents, eating good food, doing crafts and learning more about God. Chuck Sorley, the youth pastor at Central, will head up the camp once again. Pastor Joel Lawrence is also with the team. He has been busy speaking to various groups, from CSC staff and workers, to the students of the Baptist Theological College.
Thanks to the team for their willingness to come and serve, and for those who are supporting them through prayer and financial gifts.
A meaningful morning
I can't help but feel closer to God after visiting Thomas at the hospital. Thomas was sleeping; he had had his dressing changed earlier and had cried a bit, so he might have tired himself out. I chatted with the Auntie, getting a quick update on how he was doing. There has been some drainage from the surgical site over the last couple of days, so there is a potential for infection! :(
I prayed over him and held his hand, but thought I should let him rest, so soon left. As I was leaving the hospital, I could not help but think on how Thomas is such a testament to God's provision. We have had several meetings, even since before admitting him, about Thomas, his needs and our ideas about how we could meet them. We prayed a lot about these concerns and sought guidance, but inevitably, just had to surrender them to God. And we have seen God provide time and time again. The financial assistance has come through, but even more than that, our plans for how to respond to the problems or possibilities we feared would occur were not even necessary.
God is good.
Sleepy at the moment, but still such a trooper!
His toys, the books he likes to "read," tissue and a Bible---the essentials!
Here he is, receiving excellent care from his Auntie. We are blessed at CSC to have such caring childcare workers!
All the time, God is good. And we have seen His goodness in Thomas' life so many times already and countless times over the life of CSC.
Monday Update: Thomas Leaves ICU Behind.
MONDAY UPDATE: Thomas leaves ICU. No more fever. He loves books and the aunties love reading to him.
SATURDAY UPDATE: Thomas had his dressing changed today. He has staples from ear to ear. The doctor checked the surgical site and said that it looks good, with no sign of infection. Thomas was very alert and responsive today, and he made lots of eye contact with his caregivers. Matt Buley, CSC President, who is in Cebu at this time, had a chance to visit Thomas in the ICU and see his progress in recovery. Matt and Marlys brought along a radio and cd player so he could listen to music which he loves.
FRIDAY: Little Thomas continues his fight,making good progress after his serious surgery on Tuesday. He is still in the Intensive Care Unit at Cebu Doctors' hospital. Yesterday his face was very puffy and he was more uncomfortable than he had been on Wednesday. But today his swelling has subsided. He still has a low grade fever (100.7) which is normal after his kind of surgery. The doctors told us that they will be taking the dressing off tomorrow. As of today, our child care worker who is with him in the ICU is allowed to hold him, which he very much appreciates. It is possible that Thomas will be able to
go out of ICU tomorrow to a regular room.
Thanks for your prayers for our darling boy! A couple weeks ago, as the surgery was being discussed among specialists in Cebu, his doctor mentioned that he is a little battler, so we all need to battle for him to. Thanks for helping the battle through prayer.
We are so excited and thankful that some CSC friends who have followed Thomas on-line, have responded with financial gifts.
Praise God that, of the estimated costs of $25,000 for the surgery and recovery, $8,000 has already been provided!