The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Rainy Day Activities
Most days in the Philippines are sunny and hot. This past week a typhoon was passing by the Philippines bringing clouds and rain. Only the edge of the typhoon affected Cebu City, so at the shelter the temperature cooled a little and it rained off and on for several days.
The kids wore long sleeve shirts to school to stay comfortable while studying and learning. After school though, the activities changed from the normal routine. The kids could not play soccer on the playground or climb on the jungle gym. They had to stay inside, so they filled their afternoons with drawing, building boxes, reading and hanging with babies.
At CSC, we are blessed to have wonderful homes to shelter the children. We are especially reminded of this whenever bad weather is threatening. Thank you to all who help keep these homes safe and secure for the children.
MARBLES! MARBLES! MARBLES!
Marbles is one of the traditional games played by Filipino children.
Last week, Level C2 kids read a story entitled “The Marble Champ” by Gary Soto. They were so excited to read the story! They wanted to know the rules and how to play the game. When I announced to the class about our upcoming marble game championship, everyone was frantic with excitement. At first, everyone was laughing because they had a hard time rolling the marble from their thumb to hit the targeted marbles. Good thing they didn’t give up! Whenever they had extra time, they spent it practicing. One of my students even asked me how to squeeze the eraser (that is the thumb exercise the main character of our story was doing) properly to strengthen their thumb muscles!
Friday came and the game began! They were divided into 2 sets with 3 competitors each. Everyone was taking the game seriously.
The winner of each set competed with one another in a new “arena”. Everyone was holding their breath and wondering who would win the game.
At last, the games ended and Level C2 kids announced their first MARBLE CHAMPION!
- Karen Faburada
Lunch Time Hug
The lunch hour was winding down and the kids started trickling into school. I was talking with Uncle Jerry near the entrance and giving “high fives” to the kids as they walked by us. They went to change out of their shoes for their slippers before lining up for class.
One of the newer kids came up to me before joining her classmates in line. She stretched out her arms and gave me a hug. I asked her what class she was starting her afternoon in. She said Filipino class with Teacher Cora was her first class. She asked what I was going to do in the afternoon. I told her I was going to do work on my computer. When it was time to line up, she released her hug, gave me a smile, and we said, “see you this afternoon in school” to each other.
Now I sit at my computer, thinking of the things she is learning in class. One hug from a kid can power a person through a whole week of computer work.
Inspirational Speaker
The past few months we, the therapists at CSC, have been grooming Jacob into an inspirational speaker. Our main goal is to spread disability awareness to people around the city of Cebu and, through Jacob, inspire them to try to approach life positively, praising and worshiping God.
A great way to kick-off Jacob’s speaking career was within the walls of CSC at Children of Hope School on June 19. We invited the kids, CSC workers, staff and visitors. Everybody was excited for the day to arrive.
Our speaker, Jacob, got more and more excited as the day approached. He was nicely dressed in a polo shirt and tie, and was probably not expecting a huge number of people in the audience. Joemar, Jacob’s trusted roommate, opened up in prayer. Auntie Sandy introduced our inspirational speaker, and what an introduction it was!
In his speech, Jacob talked about his home, CSC, the people around him and how they influence him. He also shared about living with cerebral palsy and how he has dealt with his disability every single day. He reminded the audience to be happy and content in whatever state and condition we are in; God made us perfect and will use us to bless others. Jacob showed a video of what a typical day for him is like from sun up to sun down and he gave a video tour of his room and home.
Last week was Jacob’s first speaking engagement outside CSC. Evangelical Theological College of the Philippines or ETCP, with its dean Pastor Lowell Tallo, was very generous to have Jacob speak to their students. They all gave Jacob a warm welcome and asked a lot of questions.
Jacob left ETCP, happy, inspired and blessed, looking forward to his next opportunity to meet and share with others.
Check out the videos below: A Day in the Life of Jacob and Jacob's Speech
A Conversation
Level B2 (grade 3) has 8 students. During my first day at Cebu Children of Hope School, I was really fascinated with the students that I have. In my 2 years of teaching at other schools, I had more than 30 students in my classes. I am lucky that I am now at CCHS.
One day last week, one of my students touched me so much. He asked for help because he didn’t know how to answer a question. To be fair to the other students, I told him to read the question again and analyze it. However, he insisted so I explained the question to him and at the same time I tried to get to know him a bit more. We talked about where he had come from and a bit about his family. Suddenly he started crying. His classmates told him to stop crying, but it didn’t work. I talked with him some more and asked him, “Did you cry because of your family or did you cry because you could not answer the question?” He did not answer and instead he bowed his head. I asked him again, “Is it about your family?” He nodded. Then he looked up and smiled at me and said, “I’m okay teacher and thank you for helping me.”
-Clayd Verzales, Level B Teacher