The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Girl's Night
For the past month and a half, the older girls of CSC have had the chance to experience "girls night". Almost every weekend, two girls are invited to my apartment for an evening of fun!
The event starts long before the weekend even arrives. On Monday after school the group for the week is told that they are invited to girls night. Their excitement is immediate, and only builds over the coming days. On Wednesday the girls are given menu choices. I have a variety of dinner dessert choices that the girls have the chance to agree upon, and then make. Many of the foods on my list are meals that are uncommon here in the Philippines, so I often have to explain what the meal consists of. So far, each group has chosen something that they have never tried before!
At 4:30 on Friday, the girls meet me at the guard shack. From there, we get a ride down the road to One Pavilion, a shopping center near my apartment. I give the girls a list, and they are then responsible for finding all of our needed ingredients. Once we check out, we make the trek to my apartment on foot. It has been fun to provide this experience for the girls, and have the chance to teach them life skills like cooking and grocery shopping. When we arrive at my apartment, I give the girls instructions on how to prepare the food. Everything we eat that evening will be prepared and cooked by the girls.
Cooking has been a joyful experience for all involved. Jonnalyn and Andrea enjoyed mixing up and frying meatballs. Jannice and Pretchy made some interesting choices in dessert (corn and cheese ice cream!!). Joanna Mae and Hannah devoured their tacos (they each had about 5!). Adelyn and Ven Ven went into a sugar coma with s'mores dip. Cheryl Mae and Sarah got messy kneading cookie dough.
The final event of the evening includes watching a movie. With these girls, it was no surprise to find my collection of chick flicks exhausted. Like any teenage girl, the girls of CSC are saps for a good romance movie...especially a Disney one! Watching their reactions to particular scenes has been the most entertaining part for me. Cheryl Mae almost started hyperventilating as the kissing scene in Pride and Prejudice approached, Jonnalyn giggled constantly during A Cinderella Story, and Janice melted at the romance in The Lizzy McGuire Movie.
With the rotation of teens finished, I can say that girls night has been a great success! I look forward to many more nights of fun with these wonderful girls!
Roxaboxen
Roxaboxen by Alice McLerran was the last story in our theme on Imagination in reading this quarter and it was the best story I have ever heard for this theme. When I was reading before the class started, I was fascinated with how the children in the story enjoyed their childhood life and played all day with their neighborhood friends in a village they created from stones, boxes, and desert glass. Even after the children in the story had grown up and moved away, they still remembered the make-believe village they had created so long ago. After reading the story, I remembered my childhood days with my brother, sister, and neighborhood friends. We did not create a village like Roxaboxen, but we played in the mansanitas tree, rode our bicycles, and ran in our neighbor’s garden taking the fruit and vegetables. I wish I could go back to where I grew up, full of enjoyment and excitement.
Every child has memories of his childhood days. After we finished reading the story in class, I asked my Level B2 students to share experiences from their childhood days. They all shared about their life at the shelter. Similar to my experience, they have not had a Roxaboxen, but they are very happy and enjoy playing with their friends at CCHS.
In order to experience this make-believe Roxaboxen a little bit more, we made our own small town on a board filled with beads for stones in between houses drawn on the board.
Everyone was so excited. While we were making our own Roxaboxen, my students felt like they were in a real place. They used their imagination to create a great Roxaboxen of their own. Congrats kids!
Remember! “Laughter is timeless. Imagination has no age. And dreams are forever.” So never stop imagining and dreaming. God Bless!!!!
-Clayd Verzales, Level B Teacher
Morning Meeting
Morning Meeting! This is one of the most popular activities in school that CCHS children look forward to. Each level is given a slot every quarter to share what they have learned in SRA (reading and language arts) class through songs, poems, stories, and other activities.
Level B1 students did a great job in their morning meeting last week. They shared about kindness and sharing stories, the two most recent themes they had covered in reading. There was a variety of presentations.
One group of students shared a song about kindness.
Another group told a story using hand puppets.
One of the boys talked about sharing stories using a big hand-made book.
The children ended the morning meeting with a dance about sharing.
It was fun to see Level B1 students perform!
French Fries
Typical day in the therapy room: student having his speech therapy session with the therapist.
Conversation:
The therapist asks, “Where do French fries come from?”
Without any pause or hesitation, the student answers, “McDonald’s!”
My co-therapist and I burst out laughing. I know we are not supposed to laugh when a student makes a mistake, but we couldn’t help ourselves. It was so cute! The answer does make sense though, if you are a kid. The student just looked between me and my co-therapist with a look that said, “Okay, so what’s funny?”
It was, in fact, a true and genuine answer coming from a seven-year-old boy. McDonald’s and its counterpart, Jollibee, are a hit here in the Philippines, especially for the young kids at the shelter. It is a big deal for them when they are able to go to one of these establishments. (My blog is not about advertising for these businesses, by the way.)
Sometimes as adults we are so caught up with our adult stuff that we forget how to live life like a child, worry free. The kids at the shelter remind us that, in spite of the difficulties they have already faced at a young age, we have a God who is bigger than our worries.
I sat in the therapy room with the speech therapy session still going on thinking how blessed I am to be in this environment. I teach and treat kids with special needs and in turn, they too, teach me even more. As an English proverb says, “The soul is healed by being with children.”
Opening the Doors
Of course, most of the students at Cebu Children of Hope School are from the shelter since that is the main reason for the existence of our school. However, over the years we have had a handful of community kids attend the school for varying amounts of time. There was VJ, Andree Kaye, John Ray, Rufa Mae, Christian, and a few others. CCHS is not big enough to be able to open its doors to the community at large, so we have always brought in community kids just by word of mouth. It has usually been the case that a commmunity student attends CCHS because he cannot go to another school due to extenuating circumstances.
For the past three years we have had our hands pretty full with the kids who need schooling from the shelter, but we had our eyes and ears open for a community child who may fit into our school. Well, meet Lael. Lael lives with his family nearby and his parents heard about CCHS from someone who works in their church. Lael is eight years old and suffers from a rare syndrome called Lennox Gestaut Syndrome. His mom and dad have been looking for a school where Lael can interact with other kids his age in a safe, caring environment.
Last week Lael started attending CCHS for library and art classes two times a week. It was a great start for everyone and we are excited to have a new student in our midst. After all, we are Children of Hope for children of hope.