The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Summer at CSC!
Summer is here! What does that mean to an island that remains tropical all year round? Good question! It really only means that it is hotter-a LOT hotter! And there is less rain. And its hot. And your umbrella is your most prized possession because it protects you from the fierce sun. And then there's the heat. But really, I'm not all that grumpy about it...just a little grumpy about it... :)
The kids, however, are unfazed by the heat. They still run and play without abandon. I, however, sit in the shade and look on with amazement---my mouth hanging open.
The summer brings with it new activities. KITE SEASON is here once again! It is almost as if a switch turns on inside of them and they all decide today is the day for kite-flying. And they MAKE them! Watching them making them is a favorite pasttime of mine---again, I do so in the shade, in case you were wondering! :)
They are making these kites from twigs from brooms, plastic grocery bags, and string. Permission to be amazed granted!
In flight!
Other summer activities...
CHALK!!!
FUN IN THE SHADE---These wise girls are making crafts with flower blossoms!
What pure happiness looks like!
He is our newest kid, but it already seems like he has been with us for quite some time. God has blessed us and him with a smooth transition and we are happy to have him here with us!
Its hard to be grumpy about the heat when you have this smile to look at!
Thank the Lord for these children that bless me every day and remind me of God's endless provision and goodness!
Glory be to Him always!
A Lonely Walk
Imagine what it would be like to wake up knowing today is the last day you will see your child. I wonder how carefully you would choose their clothes or the last words to share with them. I wonder how hollow it would feel to stand on the sidewalk as they are driven away.
Imagine returning home without your children in tow. They were with you when you walked out of the neighborhood, but now you walk alone. Your world is upended. You’ve lost the title “mom” or “dad.” To make matters worse everyone is watching you from their front step or window. Secrets don’t keep long where you live—especially secrets like this.
People know what you’ve done and they don’t restrain themselves from staring. This is a lonely walk back to an empty home.
You can’t believe it got to this point. How could it? You didn’t have children to abandon them. But then he left, and there were no jobs to be found. The life you dreamed of isn’t visible anymore, and you don’t have anywhere to turn. Somehow the best option became giving them away.
Sometimes when I’m speaking to a group a person will ask how our kids end up in the care of the Children's Shelter of Cebu. I’ll confess that for most of the children a parent is still alive. “How could their parents just abandon them,” they wonder. It’s hard to explain. In our good-Christian mentality, you just don’t ever give up on your kids.
It’s hard to describe the straight jacket that is total poverty and utter hopelessness. It’s hard to explain not being able to protect or provide for your child. I can’t pretend to understand, but I know it’s easier to demonize the mom who couldn’t care for her baby than to put myself in her shoes. She doesn’t deserve to be understood because of what she’s done. Right?
I don’t know. High horses are easy to climb on when you’re propped up in a world of options. Judgment comes easy on this, but judgment has always been easier than understanding, including when a mom concludes her child is better off without her. Judgment isn't our job at CSC. Our job is to love that child the best we can. It's the least we can do for those moms whose seperation is not the mark of selfishness, but of sacrifice.
Prayers!
I just finished Frontline for the month of April (Frontline is for all our prayer warriors out there - if you are not getting Frontline and want to get it, sign up here.) Because of Frontline, I've been thinking about all the prayers we have seen answered over the years. God has certainly blessed CSC. We know that God listens to and answers prayers. We have found that God does not always give us exactly what we ask for, but often what he gives is better than we ask. Of course there are prayers that are still unanswered and prayers that were denied...but we know that God is there and trust him to know what we REALLY need, not what we think we need.
Tonight I was on duty at one of our homes. These kids are real prayer warriors. They love to pray. There have been numerous prayer sessions that end up with a few kids falling asleep while some of the kids just keep thinking of more things to pray for. Tonight we only had about 30 minutes to pray (school night you know) so I limited the kids to only 5 things to pray for. Their choices were #1 - The CSC Banquet #2 That all the people who don't know Jesus will know him #3 That we will all be safe always #4 my friend Suzy who is going through a tough time after cancer surgery and Jane Anderson (they had to share a spot) and #5 Thanking God for the people who pray for them. I wish you could have heard their prayers. I know God did.
I did sneak a few photos....as you can see a few kids were on to me. That really is how the little ones always pray...hands together in front of them.
Grace from God
Over Easter weekend my husband and I drove from Minnesota to Louisiana to visit our daughter. Before starting on the trip, I was unable to contact one of our former Children of Hope School teachers whom I knew lived in the Baton Rouge area. Instead, Grace got hold of me and said she was more than willing to drive the 170 miles (one way) in order for us to see each other. Later that night, Grace and her husband, Noel, sat in our hotel room reminiscing about former CSC kids and colleagues and sharing what we are doing now. I had not seen Grace in about seven years. It was a great time!
As Grace and Noel were pulling away to drive home, I was struck by the incredible connections there are all over the world through the common thread of CSC. Grace's life is forever woven into mine because we worked at CSC together. We share common interests in the children we taught at Children of Hope and the people we worked with. It was encouraging to hear how Grace is being used by God in a very different educational setting in the United States. Seeing Grace again reminded me the CSC family is strong and I am richer for it.
Banquet Surprise
Hey, we're working on a cool surprise for the CSC banquet. I won't give you even a hint, except that the kids and staff here in Cebu are really excited about it. Some of you will be able to see it at the banquet. (If you haven't registered yet, you can do so by clicking here.) Some will have to wait for a video here on the web site. That's all you're going to get, for now!