Staff Blog
The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
UFO's and Graduates
It is summer time at CSC. That means it is hot, really hot, too hot. But, the heat does not seem to deter the boys from making and flying kites, at any given moment there are numerous kite activities going on; making them, attempting to fly them, flying them, untangling the ones that get tangled together, trying to get them out of the trees and making sure we all see how high their kite is flying! There has to be some genetic code in all red blooded Filipino boys....April and May are for kites.
Today was GRADUATION day for five of our Preschool kids and three graduating from elementary into High School. It was a fun day for the Graduates!
We are now legally on our summer break - pray for a fun and safe time for each of our kids, and for our sanity! Having almost 90 kids on vacation in one place....oh my.
Enjoy the photos...
Pray along with us for comfort, healing and peace for our friends and loved ones in Boston.
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Molding minds
Yesterday at Children of Hope School, we proudly celebrated the graduation of three teenagers, who will go on to high school next year, and five pre-schoolers who will advance to pre-K. It was a special day for sure. The three oldest graduates have faced a lot challenges and have accomplished much in their years at our school. One of the graduates gave a speech. I thought he might discuss all of the academic challenges he had faced. While he mentioned those briefly, the larger message he shared was that of gratitude. He was thankful for his teachers and all of the time they had invested in him. He was thankful to the staff for their encouragement. He was thankful to his house parents for their guidance and leadership. He was appreciative of the support from the Aunties and Uncles in his life. And he was even thankful for challenges as he was so proud of what he had learned from them.
Waiting in anticipation...
The proud graduates!
I was impressed with his words and touched by his message. CSC is often described as a place of refuge for the kids that come here. Many have left violent homes, chaotic living situations or have had no home to speak of. We are proud to be able to offer our kids the basic things: food, shelter, clothing, a safe place to rest their head. But we are blessed to be able to give our kids even more. We have a beautiful school and a talented body of teachers who are willing to meet the individual needs of our kids. Our teachers go the extra mile every day and our kids benefit greatly from their tireless effort.
Our talented teachers!
Praise the Lord for how he has blessed CSC! Thanks be to God for how He brought each of these teachers to our school---for we are surely better for it! :)
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Kite Flying Season!
Continuing on with the theme of kites! Recently, I spent an afternoon hanging out with the kids at the shelter. Almost immediately, Jhaycob ran up to me with a tangled-up pile of string. He wanted me to untangle it so he could use it to fly his kite. I began looking around the yard and it was incredible how many kids were playing with kites. Some were making them, and others were busy untangling strings. Some of the kids were the "holders" and others were the "runners". Toddlers dragged plastic bags across the yard, and the older kids and houseparents had huge, fancy kites flying high in the sky! Some of the kites even had writing on them: "Fly CSC", "Cherne WOW", and "WOW CSC"! Enjoy a video of some of the different activities that were going on that day!
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Last Day of Preschool!
Everybody gets to join in on the kite fun at CSC. Friday was the preschooler's last full day of school. Uncle Marcel came into their class and taught them all how to make kites! They were so proud to each have on of their own! Enjoy the pictures of the kids making and attempting to fly their kites!
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Prayers
Whenever we're on duty, we help with putting the kids to bed. One of the things I love about putting the kids to bed is sharing bedtime prayers with them. The children are so surrounded by strong people of faith here at CSC - their house parents, staff, teachers, aunties, and counselors. Their prayers reflect what they've seen and heard modeled for them. They are thoughtful, sincere, and even eloquent.
Last night when we were on duty, there were prayers for lots of different things. Here are a few of my favorites:
- giving thanks for CSC
- giving thanks for the aunties and house parents
- giving thanks for hot dogs
- asking for a mommy and daddy
- asking for strength and wisdom on upcoming on final tests
- asking for healing for kids in "iso"
And the most touching prayer of all was a heartfelt request from one of the 12-year old girls in the house. She asked God to please comfort a family whose oldest sibling had recently turned 18 and could no longer be adopted. This was particularly moving to me because those siblings that she was praying for don't even live in her house at CSC. In that moment I realized what a supportive place CSC is - that all the kids and house parents and staff are praying across houses, across siblings, across ages, for God's presence in each of their lives. What a cool thing to be a part of.
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