The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Hanging Out Time!
Eight years ago today I arrived in the Philippines to begin my work at CSC. It's amazing how it seems like such a short and long time ago at the same time! I can still remember that trip so clearly, but yet it seems as if I've always been with CSC.
Recently I did a count, and, if my count is correct, 241 kids have been a part of CSC during my eight years here. Some for just a short while and others for the entire time I've been here. What a blessing it has been for me to have each of them as a part of my life!
Now my time at CSC is ending. In three short weeks, I'll be moving back to Minnesota. While I'm excited to see what God has in store for my future, I'm going to miss everyone at CSC so much! My goal this summer was to spend time with all of our 7-year-old and above kids outside of the shelter. I made a list and very slowly I've been working my way through it. Often, when the kids see me, they ask, "Is it my turn?!" It's been so much fun to hang out with them! Here are some pictures of our outings!
1. Lunch at McDonald's
2. Lunch at Jollibee! This guy was so excited to "eat outside" that he hopped, danced, and cartwheeled his way across the yard as he yelled, "Yeah!!! Jollibee!!!" I love his enthusiasm!
3. Glow-in-the-Dark Mini-golfing!
4. Nail Polish & Cupcakes Party! I took all of the 7, 8, and 9-year-old girls to my house. For those who wanted, I let them try to put the nail polish on themselves. Let's just say it was a bit messy, but so much fun! (I had to do a few fixes. The girls would come up and ask me to "erase" the messed up nail polish!) Then we headed out to a cupcake store. The blackforest cupcakes were the most popular choice...I think the cherry on top had something to do with it!
5. Dinner at Davinci's Pizza!
6. A Narnia Party! We have a sibling group at CSC that has 2 brothers and 2 sisters. Several months ago, they made the connection that they were the same as the family in the Chronicles of Narnia movie. We decided that someday we would have a "Narnia Party". This last week, we finally got around to it! The kids all created props for their characters (swords, shields, crowns, bow & arrows, etc.) and I was Mrs. Beaver. We watched "The Lion, the Witch, and the Wardrobe" and acted out different parts of the movie! The evening was filled with laughter and fun!
Tropical Trees
There is a great variety of trees here in the tropics. Some provide shade, some give us fruit and others have beautiful flowers.
The Kalachuchi trees not only provide fragrant flowers that are used for decorative leis.........
they are among the best climbing trees in the Philippines and CSC kids are the best and most adorable climbers.
Sibling love...
Isn't there a saying...siblings who play together...
No, there probably isn't, but there should be. I love watching how our sibling groups interact with each other, love on each other and even keep after each other! :)
I happened to catch some beautiful sibling footage earlier this week. Check out the video below!
This older sister is letting her youngest brother push her on the swing. I love that she is letting him feel "big" and she is caring for him at the same time. You will hear her laughter throughout the video, but you will also hear her kind of shout every time she thinks she is about to run into him! She keeps a watchful eye and you can see her trying to slow herself down often! I love that this little boy wants to play with his sister---I'm sure he would have kept pushing her except he was called to take a bath. Duty calls, you know!
No surprise that I would get a kick out of such family dynamics, being a marriage and family therapist after all; however, who wouldn't consider that moment in time precious?!
Basins
Plastic basins are used for all kinds of things in Cebu City. They are used for flowers, food, fish and bread, or for washing. They are everywhere in the city.
Of course, we have some pretty cool uses for basins at CSC, too. Basins make great bath tubs and swimming pools for our precious children!
Old Blue and me
Old Blue was sold today. Jerry Salgo, our Transportation Director, showed it to a guy this morning and he agreed to buy it, with all its flaws and limitations. It is the end of an era. Amy Luck, who has driven Old Blue a lot in the past several years, called me up this afternoon, delighted that the guy bought it primarily to bring his dad to kidney dialysis. It seemed fitting that this old clunker still had some good work to do in its final days.
The guy's going to pay for it on Monday morning. So right now Old Blue is in our car park at the Teen Home, waiting for its new home. Considering all the repairs she has needed in recent years and the times that she failed us along the way, I was expecting to be happy to see her go. But when I pulled into the Teen Home today and saw her there, I reacted in a different way. I won't say I got weepy, or even misty-eyed, but I did reflect on the many kilometers that Old Blue gave us over the years, since we purchased it from missionary friends Howard and Marilynn Plucar. I thought about the number of staff members, kids, short termers, visitors and friends who have piled into that car over the past years. The car failed us many times, but it came through more times than that. It gave all it had for CSC, and we need to remember her for that, not for her failings in old age.
Maybe one of the reasons that I got a little bit melancholy is that one of our child care workers is planning to retire. She has worked for us for something like 27 years and she is tired out. She has held, fed, bathed and cuddled hundreds of our kids. She provided one on one care to Luke for years in his upstairs room. Now she's ready to move on, kind of like Old Blue.
Old blue has dents, engine flaws and makes some very strange noises. The turns and hill climbs that used to be simple now require a strain. I guess the truth of the matter is that I feel like Old Blue sometimes these days. Old, faded, cranky. I don't want to be that way, but after 34 years on the job I sometimes feel like I need an overhaul. I'm a lot more tired at the end of the day. Sometimes I forget things that people tell me. Running after kids is something that the old joints just don't allow. The day will come when it will be time to retire. I am a grandparental figure for the kids now instead of a parental figure. One of kids, known for her rather brutal honesty said to me the other day, "Uncle Paul, your hair is white and your teeth are yellow." Yikes. I'm Old Blue.
I hope that, like Old Blue, when my days of service to CSC are done, I can know that, in spite of some failings along the way and limitations of age at the end, I gave all I had for the ministry. That's all any of us can aspire to. It was great that, in the last month of Old Blue's service, she was used a lot, to bring kids and staff to and from summer activities. She performed well. She finished strong. Hope I can do the same!
Farewell, Old Blue. Bring that old man to his dialysis safely, like you've done for our kids and staff over the years!