The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
The first question
Marlys, Jenny and I are in MN for one year. When I see people for the first time (on this stay) they will invariably ask,
"When do you go back?" Sometimes before saying "hi" or asking how I'm doing, they will inquire as to our return date. I think the reason is that we have been living in Cebu for so long that people just imagine us being there. And for some, we are their link to the Philippines and CSC. Seeing us in Minnestoa seems out of place.
Sometimes I do feel out of place in the U.S. In getting situated here we have so much learning to do about technology: phones, internet, new forms of information and communication. It hit us the other night when some of our former CSC residents came over for a visit. They had to show us how our new phones worked. It was a little embarassing, but when we reflected on it we thought it was pretty cool. Kids we helped to rescue from poverty and homelessness several years ago are now our mentors for life in the States!
A song for Jacob
“I’m overdoing this song.” That was my inner voice the other day. I had fallen for a song and ran the risk of ruining it if I didn’t stop pressing repeat. I ended up restricting myself to one listen per day. Ever had to do that?
The song is by Digital Age, and it’s called “Break Every Chain.”
The truth is, I wasn’t sure how I felt about it at first. The chorus repeats a simple refrain: “There is power in the name of Jesus to break every chain.” That sounds wonderful to me. It rings of freedom, joy and hands raised high, and I believe it to be true.
But something about the words kept bugging me. I kept thinking about my friend, Jacob, who lives at CSC. How would Jacob feel listening to this song?
Jacob is quite a guy. There is life dancing in his eyes. It can make your heart soar to get him laughing. He brings joy into a room with him and you can see how much he cares for people.
Jacob also deals with limits. If he wanted, he could focus on what he can’t do all day. Jacob can’t walk. He can’t feed or bathe himself. He can’t speak clearly. Every day is full of reminders to Jacob of the things others can do that he can’t.
Would a song about Jesus breaking every chain bother Jacob? Maybe it would for a time. Perhaps it would cause him to remind Jesus about all the chains he feels, and how much he wishes to be free of them. Maybe he would list the other kids in his home and wonder why he can’t be free like them.
We all feel like that some days, and, let’s be honest, it usually happens when we are comparing ourselves to others. We have those moments of wondering why we can’t be more than we are.
Thanks be to God, one day Jacob will be free of his chains. So will we. What is to come will be a freedom we can’t yet fathom. There will be no more hurt, despair or need to compare ourselves to others. Those broken chains will feel incredible. Maybe even a little extra incredible to my friend Jacob.
When I play that song today I won’t feel guilty about what Jacob would feel listening to it. Instead I think I’ll blast it for him.
Philippine Independence Day
The Filipino flags were flying from each house. The jello and maha was in the shape of the same flag. CSC celebrated Filipino Independence Day on Thursday.
It was a fun evening full of food and laughter. The kids kept going back for more hot dogs, jello and maha, and chips. Even though the stuffed themselves, they still found room for ice cream.
Each home gave a patriotic presentation. Eicher home presented a speech. Cherne sang a patriotic song. Duterte reenacted the history of Filipino Independence Day.
In God's Hands
When I got up in the morning, out the window was an interesting site. A rainbow was hanging low over Banawa, Cebu City. The arch that usually spans the sky was down among the people. I walked toward the next room, again looking out the window. Now I noticed something amazing. The end of the rainbow was resting over the shelter. Well, there are many buildings, homes, and business in that line of sight, but naturally I noticed the shelter situated just beyond the orange and yellow cranes.
God has the shelter in His hand. He holds so much in his hand. New children arrived at the shelter just last week, finding a safe place. Children who were sick have regained their strength. Children who were burdened not so long ago with responsibility beyond their years are laughing and playing on the shelter’s playground.
The shelter is a special place because God is holding it in the palm of His hand.
Arleen sings her heart out
You gave me time when no one gave me the time of day,
You looked deep inside while the rest of the world looked away,
You smiled at me when there were just frowns everywhere,
You gave me love when nobody gave me a prayer.
Chorus:
That's why I call You Saviour ..... that's why I call You Friend,
You touched my heart ..... You touched my soul,
And helped me start all over again,
That's why I love You, Jesus ..... that's why I'll always care,
You gave me love when nobody gave me a prayer.
You gave me laughter after I cried all my tears,
You heard my dreams while the rest of the world closed it's ears,
I looked in Your eyes, and I found the tenderness there,
You gave me love when nobody gave me a prayer.
Chorus:
That's why I call You Saviour ..... that's why I call You Friend,
You touched my heart ..... You touched my soul,
And helped me start all over again.
That's why I love You, Jesus ..... that's why I'll always care,
You gave me love when nobody gave me a prayer.
Arlene stood up in church today and sang this song. She sang beautifully. The song, You Gave Me Love, is especially meaningful for Arleen's life. She came to CSC as a five year-old orphan whose mom had just died. She is blind, and had nobody to take care of her. But as the song says, God, through CSC,touched her heart and her soul, and gave her love when society simply wasn't able to provide her with anything. In many ways, she didn't have a prayer.
As she stood up there singing I thought of the blessing that she has been to so many people over the years, using her musical talents to inspire, convict and bless.
Please pray for Arleen as she is waiting for a job as a music teacher. She has recently graduated from college and is very much hoping to get a job soon. Thanks for all who have supported her over the years through gifts and prayers.