The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Books! Books! Books!
“The more that you read, the more things you will know. The more you learn, the more places you’ll go.” Dr. Seuss
Kind, generous people send all sorts of needed things to the shelter and school. Earlier in the summer a couple of boxes arrived with an assortment of clothes, toiletries, shoes, toys, books and more. BOOKS! We’re always happy to get books at school. We were curious as to who sent the books since we had not been expecting lots of books. We were told that, once again, a wonderful friend who is a media specialist in a school had “secretly” given the books.
The kids noticed the books up high on a shelf right away when they came for library and asked if they could check them out. Since the books needed to be entered into the library system and the usual person who does that work was on maternity leave, the kids have had to wait a bit to check out the new books. Well, the books are ready now! Thank you for giving these beautiful books. We are so blessed to have tons and tons of books.
“There is more treasure in BOOKS than in all the PIRATES’ LOOT on Treasure Island.” Walt Disney
Saying Goodbye
Hellos and goodbyes are rather routine at CSC. We welcome new kids into our homes, and then serve them in a variety of ways including teaching, playing, sitting, poking at bugs, listening, hugging, healing, caring, and many other things. Eventually, we have to stop and say farewell to these kids. This is one of those bittersweet pieces of serving at CSC. I don't like saying goodbye because these are kids I've grown to know and love. And yet, I am grateful to know God has answered prayers by providing a family, in his perfect timing and way. Sometimes it takes a lot longer than we would hope or expect, but God does a lot in the lives of the kids and families during this time. It's a season of preparation and patience.
But here we are, reaching a time soon when we will say farewell to a sibling group of 3, after years of waiting. These are the same kids I took to Manila back in January. I've also had the opportunity to facilitate their Skype phone calls with their adoptive family, and teach them American Studies. As a result, I've gotten to know them well. In the midst of it all, I know that God has ordained them to continue on their way to the next chapter of their lives. I've been able to witness growth and change in the lives of these 3 young kids and I know they will be a blessing to their adoptive parents and the community where they will live. While they will certainly be missed around CSC, I know they will be loved and cared for by capable and loving parents. I have been able to witness the bond the children have with their adoptive family over Skype and I am eager to see them fit together as a family, in the unique ways God has prepared for them. So while the goodbye may be challenging in the short term, the long term trust and knowledge that God has prepared them for a new life in a different country is what brings comfort and excitement. I know God will continue to work in this family and use both the parents and the children to bring honor and glory to himself.
Hanging out on the Basketball Court
Most of my day is spent working in the office doing HR responsibilities. At the end of the day I look forward to going to the shelter and hanging out with the kids. One of my favorite things to play with them is basketball. Basketball is popular at CSC and you can always find someone playing on the basketball court. I enjoy getting to know the kids through shooting baskets, playing one on one, or a team game. Basketball is always fun at CSC. It’s a great way to end my day!
A Solution
Teacher Cris’ class was working on ordering numbers in math class recently. She had taken her students through the steps of comparing two three-digit numbers to figure out which one was the least and which one was the greatest. They had worked on the skill together using many different number pairs.
Then when it came to independent practice, things got a bit more confusing. Right away one student piped up and said, “The numbers are different!” Teacher Cris reassured the student that the process was the same even if the numbers had changed. She said, “Look at the numbers in the hundreds place value and see if they are the same or different.” And so on.
When Teacher Cris looked up next, the same student was clutching his paper to his chest, walking around the room and singing the worship song 10,000 Reasons:
Bless the Lord, O my soul
O my soul
Worship His holy name
Sing like never before
O my soul
I’ll worship His holy name.
He went back to his seat and continued to work on his math as he sang. Teacher Cris was humbled by her student’s response to his problem. What a sweet reminder to call on God when we need help.
Continuing the Commitment
The past week was a little intense for our inspirational speaker. If you remember, last year Jacob had his launching as an inspirational speaker at Cebu Children of Hope School. He then spoke at one of the local colleges. After a long rest of not giving speeches, Jacob got booked at two different schools last week; Baptist Theological College (BTC) and Southwestern University’s (SWU) Physical and Occupational Therapy Department.
The 3rd and 4th year students and teachers of BTC lingered around after the short program. They told Jacob how blessed they were hearing his testimony. It was an awesome experience not only for Jacob but for Ginda, Joemar and Wilmar who attended the program as well.
Wilmar was asked to give a sample of his singing voice. Without any hesitation, he stood up, grabbed the microphone and sang “One Way.” It was amazing to see him singing with so much confidence. Ginda and Joemar, on the other hand, were surrounded by students and teachers talking and asking them questions.
The 4th and 5th year students at SWU also had a lot of good questions to ask. They were interested to know what kind of physical therapy exercises Jacob receives. Some were also interested to hear more about CSC itself. Others recognized Joemar as a server at a fast food chain. Wilmar graciously sang “Let It Go” from the movie Frozen.
The therapy department at CSC continues to do its best to pursue this endeavor—exposing our special needs kids to the community and in turn teaching the community through this effort. Keep us in your prayers as we look for new avenues for these special needs young adults.