The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
A Special Friend
You guys all know Wilmar. You see him playing basketball, riding a bike, holding a toy lion, crocodile or a dinosaur or you see him just sitting and singing a song or two. Wilmar receives a lot of support at the school and shelter.
At school, Wilmar has three different teachers and one physical therapist. Yup, we make sure these kids get what they need. So yeah, Wilmar has teachers supporting him, but what about a friend? Who plays with him at the shelter? Who helps him line up? Who holds his hand during school programs?
Well, there is one special friend and classmate who assists Wilmar in all of these. This girl sang a duet with Wilmar in the last music recital. She holds Wilmar’s hand when going up and down to the stage; she walks with him to the next class and works on classroom activities with him. Even her classmates know who Wilmar should sit with. And she is very happy to do all of this. No complaints.
This girl is also close to the rest of the special needs kids/adults in her house. She sees them as equal. She has a big heart for them. Now, that’s one special friend!
Sportsfest 2016
Sportsfest 2016 is officially over. A great day of fun, athleticism, and sportsmanship was had by all! The day started off with a parade,cheers from each team, reciting of the sportsmanship pledge and the lighting of the torch. Then the games began!
Enjoy some fun photos of the day! The TorchGetting Ready
Hula Hoop
Sack RaceHurdlesThe Aqua Blue TeamThe Green TeamThe Royal Blue TeamThe Gray Team
Yesterday and today
I have been finishing up my book on the history of CSC. It has been a great experience to look back on the earlier years of the ministry and see how many times God has seen us through difficulties and helped us meet challenges. We have faced financial hardships, political uncertainties, sickness, natural disasters, death and a fire. And one year we faced all of these. Except the fire.
1990 was quite a year for CSC. Our board had approved a budget that was significantly more than the previous year. But income was down significantly and our reserves were being depleted. What's more, CSC's Executive Director had to resign for health reasons. There were lots of political uncertainties in the country. Many of our children were sick and one, little Sonny Boy, died after a 72 hour battle in the ICU. Three of our staff were on furlough during the year, leaving us short-handed in Cebu. And, in November we got hit by super typhoon Ruping which cause lots of damage in Cebu, though nothing major at CSC. We were inconvenienced by power outage and lack of sufficient water.
Not a great year. But one where we learned a lot about God's sustaining power, his heart, and our ability, with his help, to withstand lots of challenges. We also learned a lot about CSC's supporters, and how they rally around us during difficult times. People stepped up, pitched in with the fund raising, gave sacrificially, prayed for us and help pull us through 1990. And every year since.
Some of you have been around CSC since 1990. If so, thanks for then and for now. If you were a part of our stupendous December giving rally in 2015, or have been praying for CSC or our family, BIG thanks. We have needed you so much. We take on the challenges of today and in the future because of what you have meant to us in the past. Bless you all.
Playing with Dominoes in Science Class
If you walked by our science class on any given day, it might resemble play time. In fact, we are having so much fun, things are falling over fast! One of the science classes recently finished a unit on speed. They learned how distance, time, and speed are related. To further illustrate this relationship, they had the opportunity to play with dominoes. The class was divided into two teams. The teams had to line up 25 dominoes that were equally spaced in such a way that their dominoes would fall faster than the other team. This led to a lot of discussion about concepts related to speed, and we had fun in the process!
A Wonderful Surprise!
Happy New Year!
God is GREAT! He has been so faithful to Cebu Children of Hope School during the past year. His protection and provision were so evident in the lives of each one of us at school. A number of kids were given forever families and are now starting new chapters in their lives in new families, homes, and schools.
This year already God has given us a wonderful surprise at school. Seven lovable students joined classes after the Christmas break, three preschoolers and four elementary students. Their coming has made the school merrier because each one of them is a bundle of joy. They are gifts from God that enrich everyone’s lives at school.
New Preschoolers
New Elementary students