Staff Blog
The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Moving in
When children are admitted to CSC they almost always start their time with us in the infirmary. Most of them have parasites or need to be checked for tuberculosis. For some of the kids it isn't a lot of fun to be stuck in isolation when the kids are playing down on the playground. They are happy when the day comes that they can go down the steps and move into their new residence.
The other day our new sibling group of four made that move. Chosar, Marie, Charls Kyle and Stone had been in isolation for just a few days but were very anxious to say goodbye to the nursing staff and head for the Cherne Home. So when the time came they grabbed their stuff and headed out. Even though Stone, the youngest, was still asleep, the older three could not wait. Friends and aunties were waiting to greet them. Toys and Barbie dolls were also waiting. It was a grand day, and Auntie Tammy captured it on video.
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Graduation
I was going through some pictures the other day and I found these shots that were taken at the CCHS graduation last week. Although this is not the first blog post about graduation, I thought these pictures of our little ones at the graduation ceremony were still share-worthy. :) What a fun day!
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On the other side of the world
McDonald's, a cup of coffee, and a plastic chair.
Those are a few of the things that you would have seen if you were watching the CSC banquet on the other side of the world.
Some staff here in Cebu got up early on Sunday morning to watch the banquet via Skype. We all met at 7:30AM in the school library (hence the plastic chair), Tammy was kind enough to order McDonald's (yes, McDonald's delivers in the Philippines), and I had brought with a fresh mug of coffee from home. Needless to say, it was a really different experience compared to the CSC banquets that I attended while in Minnesota.
After the videos were played, the speeches made, and the donations collected, Lindsay and I headed down to the shelter to play with the kids for a little bit.
I was incredibly moved by experiencing these two things back-to-back. On one side of the world there were people learning about, praying for, and sacrificially supporting these precious children. On the other side of the world, these same children played with kites, laughed with their friends, and slept safely in their cribs.
Today, in a way that I've never been able to before, I saw how incredible connected these two places are.
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Invested
This past weekend was banquet weekend for CSC. We here in Cebu, the staff and children, were very much invested in all of this. We made a couple of videos for the events, a silly dance type video for the adoptive families party on Friday night, and a parade video for the banquet. It was a lot of work and everyone joined in and did a great job. I couldn't believe how hard the kids worked in extreme heat to do the parade video, and how they didn't complain or lose interest in the project.
We care a lot about the events and efforts that are extended to raise funds and promote this ministry. We are happy to pitch in and do our part, and to pray for those who work hard to be able to send money here to purchase food and medicine, and to pay the salaries of our workers. The children understand what it takes for them to be able to live at CSC. It takes lots of generous people and those to tell them about CSC.
I wish you could hear the children pray at night, always including our supporters. They pray blessings on each of you and your families. We are invested in all that goes on at CSC, for we are the benefiaries of your kindness. I hope the people who viewed the videos enjoyed them as much as we did making them. Here are a few pictures of the kids, captured from those videos. They aren't very clear because they aren't actual photographs but screen grabs. But I thought you might enjoy them anyway.
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Winning the Jackpot
Tonight Bjork and I had the honor of taking my student and her two siblings on an outing. I had promised each of my students that I would take them on an individual date, and this student wanted to share her date with her siblings. So off the mall we went!
We walked around, ate hamburgers and French fries, and played arcade games. There was so much laughter you wouldn't even believe it. These kids all have such a great sense of humor!
When we headed into the arcade, the girls immediately gravitated towards the game where you try to hit the jackpot as the light circles around on the board. They tried and tried, and tried, and tried some more. But they could not get that jackpot. I was starting to silently pray that they wouldn't be too disappointed if we had to leave without them ever getting the jackpot.
Finally, with the jackpot number well above 100 tickets (big time), she did it! She hit the jackpot! There was screaming, high fiving, jumping, and squealing. I tried to capture a little bit of the excitement as the tickets started pouring out of the machine.
As we drove home tonight, I couldn't help but feel like it was me who won the jackpot. To be able to spend time with such happy, fun-loving, and smart kids on a daily basis is such a privilege and a joy. Tonight it's hard to think of anything that could be more jackpot than that. :)
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