The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
Helping our Brothers
Over the weekend, I made a phone call at 4 a.m. Cebu time/2 p.m. Minnesota time to a bike shop in Roseville, Minnesota. When the connection went through, right away I heard lots of people talking and laughing and the hum of bike trainers in the background. A bunch of people with various connections to CSC were at a Habitat for Humanity event called Ride For Cebu (http://habitathomescebu.wordpress.com/) to raise money for the purpose of helping CSC workers get better housing.
The phone was passed around so I could talk to some of the riders. I talked to a couple of employees of CSC, an adopted CSC child, two supporters of CSC, an adoptive parent and an employee of the bike shop. There were a lot of other people there whom I did not speak with.
The verses in I John 3:16-18 say, "This is how we know what love is: Jesus Christ laid down his life for us. And we ought to lay down our lives for our brothers. If anyone has material possessions and sees his brother in need but has no pity on him, how can the love of God be in him? Dear children, let us not love with words or tongue but with actions and in truth."
All of the people who showed up at the bike shop care about CSC. They were there living out God's love through their actions by participating in the trainer ride. Tears came to my eyes as I sat in my apartment half way around the world in Cebu in the middle of the night.
Silent Night, Holy Night
Last night I worked late in my office. When I came down the outside stairs I was struck by the silence. Even the moon was hiding behind clouds. I didn’t hear dogs barking, roosters crowing or goats bleating. I didn’t hear music drifting across the neighborhood. Most of all I didn’t hear any sounds that are normal for having 80 plus kids on one compound. It was a Silent night. I decided to go into the homes to see just how far this silence could be pushed. I expected to see and hear at least a few babies awake to be fed or changed. But, in each of our three nurseries it was silent, all the babies and toddlers were asleep! The Aunties were busy preparing bottles that would soon be demanded and arranging clothes that would soon be needed. It struck me that it was not only a silent night, but it was a Holy night. Seeing these precious babies that have come to CSC for life and for a future, seeing them sleeping in a safe place and being confident that their needs will be met; it struck me that I was in a Holy place. A place where God was working, Silent and Holy.
Here is a bit of what I saw...
Smiling!
It's obvious that CSC cares for kids' physical needs, but lately I've been thinking about what an important role CSC plays in their emotional development as well. The caring aunties, house parents, staff, and teachers help the kids here build trusting relationships.
Sometimes newer kids are very shy and hesitant. For example, up until yesterday, this little boy would get big wide eyes, reach out for an auntie, or cry whenever I walked into the room. I felt horrible for making him so nervous.
But yesterday, HE SMILED at me! And I caught it on camera! The aunties and house parents are so loving to these kids and it's so cool to see even the babies "coming out of their shell" as they start to feel more safe and comfortable here. :)
Who's most important?
Last night I got to the shelter in time to chat with the kids before prayers and bed time. For some reason, one group of girls had all kinds of questions about what employees fit where and who's "in charge" of whom. I began to wonder if I needed to get the org chart out. We seem to be raising a lot of management consultants right now (or a group of experts at delaying bedtime).
I wasn't sure what to think about the questions and was hesitant to answer. The hierarchy didn't seem all that important, and I wondered why they would care.
But then, why wouldn't they? This is their home, and I suspect behind all of this is an underlying question that goes something like, "we can trust all of you, right?" They want to know who will take care of them, who will sacrifice for them and who will always be there. I think I could go through that org chart and check every name off when it comes to meeting those criteria. I'd put this team up against any other, anywhere.
Eventually the questions turned into who was more important and that's where I stopped them. You might know how easy that was to answer. "You are, girls. You are the reason all of us are here, you are the reason our jobs matter, you are the ones who make this important."
That answer had the advantage of being true...and getting them to go to bed.
Adoption Consciousness Week 2013
For the second straight year, CSC participated in Adoption Consciousness Week in Cebu City. The celebration is aimed at increasing knowledge and interest in local adoption. CSC children joined the motorcade and a special program that featured musical numbers from local child caring institutions, a video that highlighted their programs and services, and some brief talks by officials of the Department of Social Welfare and Development. Our own Mae Ann and Margie emceed the program and did a great job.