The following was written by Marlys yesterday when we found out that our little TomTom would need surgery the very next day. Today. Please pray with us that he will recover from this dangerous surgery. We love him so.
Hello everyone,
Dr. Aldana is the son of a prominent neurosurgeon in Cebu, who was one of our doctors way back in the early 80's. He is here with a team from Florida, doing surgeries at the government hospital called Vicente Sotto Medical Center. He examined Thomas yesterday, along with our own surgeon, Dr. Mark Gigataris, and a Pediatric Intensive Care specialist, also from Florida. They have an organization that raises funds to do surgeries for low income patients, and they happened to have one vacant bed so admitted Thomas yesterday afternoon to VSMC. The director of the neurosurgery department, Dr. Briones, was also at the meeting. Dr. Briones said that VSMC has the best and most complete facilities and equipment to perform the surgery that Thomas needs to address his urgent need, which is to remove the fluid that is building up in his brain. The surgery, called Endoscopic Third Ventriculostomy, will be done in a few hours. While doing the surgery they hope to drain the fluid, but if they notice that it isn't working well they will put in a shunt during this procedure. They would prefer to put the shunt in two to three months later, but they will have to wait to see how things progress today.
Thomas is in the pediatric ward, which is about the size of our lab in the infirmary. There are six patients in there, and there is barely space for a chair in between the beds. There is an air conditioner, so that is a blessing.
Thomas has complained of headaches lately, and the Aunties told us that sometimes he just lies down suddenly, so those are signs that the hydrocephalus is starting to cause some problems.
The next surgery will be done in a few months to reconstruct the back of the skull, as there is an obstruction there, which caused cysts to form on the spinal cord. Six titanium plates will be needed, which cost P40,000 each. Dr. Aldana brought plates with him, so he will donate some of them for Thomas, and the surgeries will all be free. As you can imagine, we were thrilled to hear that. He said that Dr. Gigataris has a huge job ahead of him to help our precious Thomas. Dr. Gigatiris is thankful that Dr. Aldana is here to help with the ETV, as it sounds like he hasn't done this particular surgery very often.
Thomas adores Dr. Gigataris, and whenever he gets a bit nervous he calms down immediately when we reassure him that Dr. Mark will be with him every minute of his surgery.
When Dr. Gigataris first met Thomas four years ago he told us he would need to do complicated reconstruction of his skull for sutures that were fused prematurely. When he heard how he needed surgery in Manila for stents in his nostrils to breathe when he was five months old, he told us with tears in his eyes, "This boy has been fighting for his life, and I want to help him fight even more." He did an amazing job with Thomas in 2014 and has taken good care of him ever since.
Dr. Gigataris' wife is Tom's neurologist. One day when we were in her office she told Tom that she loved him. He said, "I love you" back to her, but was looking at the colorful decals on her walls, not really paying attention to her. She held his face in her hands and told him that if he is going to tell someone that he needs to look the person in the eyes, so he looked up at her and said, "I love you." It was a touching moment. These two stories illustrate how wonderful this couple is, and we are thankful to have such loving and caring doctors for our children.
There is no doubt in our minds that the Lord brought this wonderful team of doctors here at the perfect time for Tom, and we have all the confidence in our own doctors here in Cebu. Thank you for your prayers for this incredible little boy.
A Change of Scenery
Prior to Covid, one of the things that children at CSC looked forward to was an appointment off campus. Older kids loved going to the dentist and getting an ice cream treat after. Younger kids were excited just riding in vehicles and seeing all the cars and motorcycles. These have not been an option since the shelter has been on lockdown. Medical consultations have been completed online, lab tests are done in the infirmary, and even eye check-ups are done at the shelter now.
There were a few exceptions, including for this five-year-old boy, who left campus recently for a hearing test. On the way, he looked through the window of the vehicle with a sparkle in his eye! It was as if everything was new to him. He pointed and described every truck and car, as well as the people and animals on the road.
This boy was so sickly prior to the pandemic, and he spent a lot of time at clinics to see a pediatrician or pulmonologist. And there he was now, just going for a routine hearing test. The CSC lockdown has somehow kept him healthy, away from all the dust that caused his frequent asthma attacks. But it has also limited his exposure to the environment outside the CSC walls. Through it all, he was one happy kid, having to spend a few hours outdoors.
Beauty and Madness
They said that time heals. True. However, time alone could not do all the stitches. Most of the children here in CSC have a myriad of wounds to heal from their past. A wound on their knees would only take a week to heal but a wound made when no one helped them to get up would take years, a hundred of CSC outings, and relationships. Some have spent most of their childhood here. And that's a lot of time yet most of them are still haunted by the ghosts of their past— the phantom of neglect, rejection, abandonment, and the monstrous impact of separation from their significant others. Time is not enough.
I've been working with these children for three years and I've witnessed how these ghosts have influenced their behaviors and perspective of their own selves and their lives. Despite these, I've also observed how the love and care provided by the houseparents, aunties (caregivers), and other staff in CSC have greatly lessened the grip of these ghosts in their lives. Because of this, children have retaken the cape of their childhood. Trust has sprouted again and has blossomed into friendship and family. It is truly magical to witness how a child trusts an adult again. A positive and healthy relationship is, for me, the greatest healing the child could have. In counseling, we highly value relationships as this always precedes any counseling techniques. Although it has always been a challenge gaining the children's trust, art has paved the way for us, counselors, to see and hear their stories. It has been a great tool for us to deal with resistant children in counseling. Art allows the child to express himself/herself in ways he/she is most comfortable to. It allows the child to "reflect their inner worlds, depicting various feelings" (Malchiodi, 1998). Art helps the children share their stories to us in a non-threatening way. It allows the child to have full control of their creation. Painting, drawing, music, and photography are the usual art modalities chosen by the boys.
The pictures above are just some of the ways to utilize art in helping children become aware of the ghosts of their past. Some, especially the older ones, have slowly faced their past in a more positive and hopeful way. I am hoping that the time they spend here in CSC would help them see the collateral beauty in pain.
They said that time heals. True. It is true but time is not enough to do all the stitches. Instead, time allows our crushed spirit to get up; to acknowledge pain and becomes familiar to it; to understand that our pain has an ending; to have relationships blossom; to ignite a new dream; to see that all along God has been stirring the wheel. And time helps the children to better understand that "all things work together for good to those who love God, to those who are called according to His purpose." (Romans 8:28, NKJV).
Love in Any Language
Most of us, if not all, have been taught by our parents or guardians to say "I Love You." Though we might not know what that means at a very young age, as it's hard to fathom what love is when you're three years old. But over time, with experience, we understand what it means.
Our homes at CSC are not only a place of refuge for the children we serve but also a place of love.
Most of our caregivers have been working with us for more than a decade. And in that time, some of them have formed a special bond with the children they care for. Likewise, our children have found a safe place with their caregivers. They have learned what it feels to be valued and loved.
One particular 6-year-old boy recently knew that his Auntie (his caregiver) lost her husband years ago. That meant his Auntie no longer had her loved one with her. And because he loved his Auntie, he offered to be her husband. For sure the little boy is unaware of what it meant. But for him, it was an innocent and genuine act of love. The scenario was cute and funny, but it tugged the hearts of our caregivers.
The children at CSC come with different stories and different abilities but we love them all the same. And that speaks heavily to the children as they also see sameness and no difference in one another.
A new child joining the CSC family is welcomed with so much love. The same way a child is hugged with so much love by his friends before he leaves and joins his forever family. Love remains even after a child leaves the shelter. It remains no matter how near or far the distance is. Love continues in the heart of a resident as he spreads his wings into the community and in the heart of a child as he starts forever with a family. Still love continues in the hearts of parents who welcomed a new member of the family.
1 Corinthians 13:4-7, 13 NIV "Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres...And now these three remain: faith, hope and love. But the greatest of these is love."
CCHS Update
We're back!
CCHS is back on track. After the "storms" that made us clasp our hands and bend our knees in prayers, the Lord has been gracious and faithful to His children.
Our water pump was replaced with a new one so we can have flowing water in all of our faucets. Thanks to Uncle Jerry and his men who made this possible.
Our supplier of drinking water also delivered in the afternoon. This same day we quarantined twenty-three workers at CCHS.
Our power from the grid was reconnected. We had been using our generator in the evenings for lights, fans, and charging our laptops and cellphones.
And soon, our internet will be restored. We are finally back to teaching children at the shelter. We praise the Lord for preserving our lives and sustaining us through the "storms".
With this journey we are grateful for those who prayed for us and to those who supported us in many ways. You made a lot of things possible on this side of the globe. You have allowed us to make a difference in the lives of the children in the shelter.
Lamentations 3:22-23 (English Standard Version)
"The steadfast love of the Lord never ceases; His mercies never come to an end;they are new every morning; great is your faithfulness."
Praise the Lord!
Typhoon Clean-Up
The first thing that we repaired after the typhoon was power lines so we could use generators. Then we worked to fix the broken main pipe that supplied water to both Cherne home and Eicher home, including the wash house. Next was the power lines that will receive VECO power. The clearing was not so hard because we were able to use a small chainsaw for the smaller branches and trunks. But for the big ones like the one that falls to Cherne home we need to hire someone with a big chainsaw and knows how to do it so as not to add additional damage to the building. One of the challenges is, it's hard to find one because they are occupied in their neighborhood itself. With scarcity of materials, prices become more expensive. Another challenge was communication. It was very hard to contact people to get materials with no internet and electricity without the generators. Drinking water was another problem but we are thankful to God CSC has its own deep well and gensets.
We will continue to repair the shelter and support our friends and family through this time. All glory and honor to God because he is the source of all those strength, wisdom, resources and dedicated supporters to continue the work of the CSC ministry.